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Showing posts from April, 2004

Wed. 4/28/04 - One Year!

Wednesday, 4/28/04 One year ago today Les had his brain surgery to remove his tumor. It seems so long ago in a way, yet at the same time it seems like yesterday. Our lives made a dramatic change during that weekend, yet we can all say that God is good. I'm sitting here in the hospital room and Les is receiving his chemo (our regular two-night stay). He's sitting up watching a video and he's already played in the playroom twice and the schoolroom once today. His best friend from Murrieta also came to visit today with her family and they traded turns riding the tricycle outside on the patio. All that to say that our days are upbeat and busy and we are looking forward to our final treatments in the next couple months. Thanks yet again for your prayers of support. We couldn't have made it this far without God's healing hand and your helping hands.

Tue. 4/20/04 - Clear MRI

Tuesday, 4/20/04 Results are in – MRI was clear once again!!! Praise God!!! We are off to Corona this morning for an OT appointment. Life is going to be a bit busier now with appointments in both San Diego and Corona, but it will help Les get his strength and coordination back again, so it’s important. Last weekend Les spent two nights at Gammie’s house so Jason and I could get away for the weekend. We finally got our weekend get-away after a one-year delay. If you don’t remember, we took Les to the emergency room this time last year (the weekend after Easter) instead of going on a planned get-away. This year we all enjoyed ourselves and Gammie did a great job with Les’ feeding schedule and nighttime routine. Thank-you Gammie!!! Life is a bit scrambled around here with all the room changes, but I’m excited. I was able to track down some new cabinets for the new schoolroom – for FREE. I am also receiving some donated shelves and bunk bed for Les’ new bedroom. Things are coming to

Sun. 4/11/04 - Easter

Sunday, 4/11/04 Happy Easter! We had a fun filled weekend with many egg hunts, gatherings and of course, church service. My digital camera was old and now is gone, so I’ll have to get my 35 mm photos developed to put on the web. I was hoping Les would get through this latest round of chemo without needing a hemoglobin transfusion, but it didn’t work out that way. Friday we ended up staying at the hospital all day waiting for blood and then getting the transfusion. It was a good excuse to go see the grandma’s at dinnertime before heading home. Les is still doing great. At our last doctor check the doctor said that Les was handling the treatment extraordinarily well. I guess a lot of other kids get their dose reduced as Les has, but they don’t respond as well as Les has. I’m taking that information as an answer to all our prayers. Thank-you, and Praise God! Les has another MRI scheduled for this week on Wednesday. I’m expecting another clean scan to add to our collection. On the

Sat. 4/3/04 - No Blood

Saturday 4/3/04 No transfusions this week!!! This means he probably won’t need them at all this round, as we are coming out of the “lowest counts” phase. YEAH! It was funny; Les likes to get transfusions (I don’t know why, but he does, so I’m not going to mess that up). Yesterday (Friday, 4/2) he wanted his blood test results to be low enough for a transfusion and I wanted them to be high so we could just come right on home in time for lunch. We had fun realizing one of us would “win” and one would “lose” and neither of us had any control over the situation. I ended up winning this time, and we made it back into town in time to meet up with daddy for lunch. This last week Les was a little more tired (napped everyday), but still he’s having a fun time being 5. Grandpa Martin and Gammie both came by this week to spend some time with him and he always gets riled up when he has visitors to play with. We’re all excited around here because some of our rooms are trading places. The music