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The content from 2003 to 2010 has been transferred over from our previous web host. So, on occasion, reference will be made to menus and such that no longer exist. The journal entries were priority and the rest wasn't able to be moved. So, enjoy our story. God is still moving and working in our lives.

Mon. 5/31/04 - Memorial Day

Monday 5/31/04

A Happy Memorial Day to you.

Les and I survived our last inpatient stay at the hospital last week. We both had a relatively good time. My cousin, Debbie, and grandma came on Tuesday afternoon and stayed till after dinner, and then my cousin came again on Wednesday for lunch. My mom came on Wednesday evening and stayed with Les while my grandma took me out to dinner and a play (we saw South Pacific). On Thursday we were able to get discharged fairly early and then we went to visit my cousin, Matt, at his house. From there we met up with my sister and then my dad came over after we got home. Oh, and I think Gammie came over sometime that evening too. What a wave of support for Les as he approaches the final weeks of treatment.

I finally got the photos developed from our events in May. The first event we attended was called Courageous Kids. It is sponsored by the American Cancer Society and is hosted by Sea World. It was held on Mother’s Day (5/9/04) and they pampered me. They had lunch, a great “goodie bag”, some crafts, games, and a bunch of raffle give-aways. They even did a game of musical chairs with the moms. The news media was there and they happened to get some footage of me falling into a chair and laughing. It was the clip they used for the evening news that night. We were also able to purchase passes to Sea World for the remainder of the year at a huge discount.

The following weekend was the Celebration of Champions (5/17/04). This event is exclusively for the kids from Children’s Hospital who are being treated (or have been treated) for cancer. The event is wonderful. It starts with a relay “race” where each child currently in treatment or recently completed treatment “runs” a 1/8th mile section while carrying a torch of tissue paper and then passes it off to the next runner. Each child runs with a celebrity and a corporate sponsor. This year our celebrity was Trevor Hoffman, a pitcher for the San Diego Padres (#21). He was very popular and we were able to get a couple pictures before he was whisked away. Again the news media was there and they took footage of Trevor with Les and also did an interview with me. They ended up showing Les on the news that night and not me.

Following the Celebration of Champions event, and after a quick nap at grandma’s, we were off to the Padres game. Outfielder, Ryan Klesko (#30) purchased 400 tickets for the kids and families that attended the Celebration of Champions. The kids are invited to go out on the infield during the pre-game activities where they are recognized as champions before the entire stadium. This year the Padres were playing the Cubs and I have a picture of Les and Jason on the field at the same time as Sammy Sosa. They never saw each other, but it happened nonetheless.

The next weekend (5/22/04) Murrieta was holding its Relay for Life, another American Cancer Society event. This is a 24 hour fundraiser that happens in many cities all over the country. We got together with a group of family and walked for a couple of hours.

Because of all the “events” this month, it’s been hard to make much progress on Les’ new bedroom and the schoolroom/office. I hope June slows down a bit so we can finish up those projects and get our house back in order.

Les is doing great so far this cycle. His hair started coming out again a couple weeks ago, so we shaved it off again. It’s now coming in again fuller than before. Hopefully he won’t lose it again. The area around the scar in the back of his head is still bald and I don’t know if it will come back or not. Pray that it does.

Well, enough for now. Thanks still for your prayers and support.

Tue. 5/25/04 - Last Stay!

Tuesday, 5/25/04
We’re here at the hospital for Les’ last inpatient chemo stay. Les has this place wired. He validated the parking when we arrived and then checked himself in at clinic. All this while I was unloading the truck (he was within eyesight and in a safe environment).

Let me clarify that this is not the last chemo Les will receive, just the last time we need to spend the night at the hospital. He will receive his last dose of chemo on June 9, 2004.

Today Les received a cassette/CD of “Teddy Bear’s Bedtime Bible Stories” from the playroom. He wants you to know that he likes it and “it’s mine” (we’re still working on the sharing issues). Also at the playroom was the Home Depot man. He comes in once a month and brings little wood kits for the kids to make. Today Les was making a sailboat. He got started on it and then dismissed me and let me know that he didn’t need me there anymore. I obliged and am now updating the website.

This month of May has been full of events. I’ll wait until I get the photos back and fill in all the details on later updates.

Suffice it to say that all is going well and we are excited to be almost finished!!!

Tue. 5/11/04 - Morro Bay

Tuesday, 5/11/04
Well, it’s been a couple weeks since I updated. Life is GREAT at the Fountain house. Our spirits are up and we are counting the days until Les’ final chemo treatment. We start our last round of chemo the day after Memorial Day, and we’re looking at June 9, 2004 as being his last dose of chemo (outpatient). It’s hard to say what will happen after chemo because every kid is different. I am assuming his appetite will come back, but I don’t know exactly when or how fast. His hair is already coming back (it’s even fuller now than these photos show) except for the lower section on the back of his head where the higher doses of radiation were concentrated (it still might come back, but we just don’t know). His physical muscle control and strength should improve, but I don’t know how quickly. As you can tell, there are still many uncertainties we will have to go through, but at least they are all positive and uplifting uncertainties.

Let me go back and recap a bit of last month. On the weekend of April 24th, we attended Jason’s cousin’s wedding in Morro Bay, Ca. The wedding was at the Inn at Morro Bay overlooking the harbor and Morro Rock. When we checked into our room we were delighted to see the wedding rehearsal just below our balcony on the patio, in fact we decided to watch the wedding from our balcony. We were also delighted to see our own personal hot tub on our balcony (we were not in the hot tub during the wedding!). Les attended all the functions and got to dress up in his “gentleman clothes”. One of the ladies at our table during the reception taught him to dance and he then asked everyone at the table to dance with him. Grandpa Barry was the only one to decline. Les even joined in the toasts by sipping some Martinelli’s sparkling cider. He said he liked it, but the next day he tried some again and he didn’t like it. Talk about finicky.

We delayed the start of Les’ current round of chemo by one week so we could attend this wedding and have him feel his best. It was amazing to see improvements in Les with just one extra week off chemo. I can’t wait to see him at two weeks, seven weeks, four months, etc.

Another nice part about this trip is we were able to see Jason’s dad and my grandparents and aunt who all live in San Luis Obispo. Les was at trooper during the car rides. His portable DVD player came in handy.

Overall, our lives back at home are still pretty busy and relatively stressful. Last week I had to take Les to an appointment everyday of the week. We had two in Corona, two in San Diego and two in Murrieta (we had two appointments on Friday). We still managed to squeeze in a play date with his best friend, but I neglected to do laundry – something had to give. This week we have three appointments, and today I got caught up on all the laundry.

Thanks yet again for all your prayers and support.
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