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The content from 2003 to 2010 has been transferred over from our previous web host. So, on occasion, reference will be made to menus and such that no longer exist. The journal entries were priority and the rest wasn't able to be moved. So, enjoy our story. God is still moving and working in our lives.

Thu. 3/17/05 - St. Patrick's Day

Thursday, 3/17/05
Happy St. Patrick’s Day to you!

Sorry it’s been so long without an update. Life is moving along around here at a far more rapid pace than in the past. Les is doing great! And we are all transitioning back into a “normal” schedule. You know, like cleaning the house on a regular basis, grocery shopping, laundry, schoolwork, yard work, church volunteering, etc. My I forgot how busy one could get when they concentrate on more than one thing at a time. Thanks to everyone who allowed us to NOT have to concentrate on many of these mundane items while Les was in treatment. It took me awhile to get used to shopping and cooking again, but I have actually enjoyed it lately.

I guess you all want an update on how Les is doing. He had his monthly clinic visit yesterday, and if the amount of time spent with the Dr. is any indication of severity of prognosis, we’re in the clear. The Dr. was in the room for less than five minutes and besides listening to Les’ heart and lungs, the most time was spent on filling out the paperwork for the next MRI to get scheduled.

Here’s a recap of the last couple months:

January 31, 2005 – Les’ g-tube was removed. It was a bit of a surprise to us because our appointment was for a consultation and we expected to have to make another appointment for the actual removal. The doctor looked at him, asked me a few questions and then said she could take it out right then. Well, not knowing what I was getting into, I said yes and it was done in a blink of an eye. No surgical procedures or anything. It was held in place with a catheter like balloon and she just deflated it and slipped it right out. The hole that was left was about 1/8” in diameter. She placed some gauze and some tape over it and sent us on our way saying to change the gauze when it got wet.

The appointment was in the late afternoon, so we went to grandma’s for dinner and to wait for the traffic to subside. At grandma’s the gauze needed to be changed every 10 minutes because he just kept leaking. At grandma’s suggestion, we upgraded the gauze to a cut up maxi pad. It lasted about 20 minutes and I’m trying to figure out how we’re going to make it an hour in the car for the drive home. My mom came to the rescue with a diaper. We cut that up and it worked great.

The next few days, I kept it covered with a diaper section and then it closed up sufficiently to go back to using a gauze pad. It has yet to close up completely and so we have a surgery scheduled for April 14th, 2005. If the hole closes up by itself by then we can skip the surgical procedure to close it up. However, the Dr.’s want to have Les’ port removed to limit any sources of possible infection. So, we are going to do that on the 14th of April anyway and add the g-tube closure if need be.

It’s interesting living with a son who has a tummy leak. It has made for a few comical experiences. One of which was when Jason and Les were eating dinner (I was off somewhere) and Les finished up with a nice glass of chocolate milk. After dinner, Les wanted to learn how to turn the new under counter lights on in the kitchen. They require just a touch of your finger and they switch on and off. Well, Les stretched up to reach the light and suddenly had chocolate milk spilling down his pants. Jason and Les laughed it off and Jason commented that Les had proved he was “full”.

Well, enough g-tube stories. Les has also been going to Round-Up HOPE on Saturday mornings (when it’s not raining). This is the therapeutic horseback riding lessons that we tried to get him into last year with little success. Well God provided scholarships and grandparents to fund it for 6 months. YEAH! Les enjoys his time on the horse and it’s just one more way of providing opportunities to strengthen his body.

We are also really close to being able to transfer Les’ school therapy contract over to the lady who is qualified to do hippotherapy – Physical Therapy on horseback. Her company is now in Temecula and offers both PT and OT services. Not all sessions would be on horseback, she is also willing to do pool work, meet with us at home, parks, etc. She’s wonderful! Please pray that we can transfer to her soon and not have to wait till the next school year.

Speaking of school, Les is doing great! He is excelling in Phonics and will be moved ahead to the Advanced 1st grade curriculum as soon as we get it. The other subjects he’s doing well in also.

Oh, I almost forgot the most recent wonderful news. Les had a birthday on the 14th. He’s now a big six year old and requires two hand to show you his age. We had a big party on the 5th in conjunction with cousin Jazzy, who’s birthday is on the 8th. All the family joined together at Aunt Joanna’s and Uncle Billy’s for a wonderful day of bouncing on the trampoline and eating and opening presents. Then on Les’ real birthday, last Monday, we took him to LEGOLAND! Les rode his first rollercoaster, drove a small car on real little streets and received his LEGO drivers license and just plain enjoyed a beautiful day. We had mommy, daddy, Les, grandpa Martin, Nana Vicky, and great-grandma Amick with us. The things they can make out of LEGOs are amazing!

Well, that’s enough for now. I’ll update again in a month or two with the outcome of the the surgery and next MRI.

Mon. 1/17/05 - 2004 Recap

Monday, 1/17/05
Les had another clear MRI this month – Praise God!!! We are continually thankful for God’s hand in our lives and look forward to what 2005 brings. Les is continuing to gain in strength and stamina and has not had any problems eating. We go for our monthly checkup tomorrow and hopefully will start the process to schedule the removal of the g-tube.

I’m including our Christmas letter below for those of you who haven’t seen it.

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Greetings,

Hi! Please let me introduce myself. My name is Goofy and I’m an I.V. tree. I have been living with the Fountains since August of 2003 and I got my name because my 5 wheels always want to go in different directions and I’m hard to control. I was given the job of holding Les’ food bag and pump after his appetite dropped off from the chemotherapy he was receiving for his brain cancer. I’ve recently been relegated to my box and put out in the garage because Les doesn’t need me to help him eat anymore, but over the last year I overheard Jason and Cecillia with Les as they tucked him in each night, reviewing what they had done that day. Sometimes Les was already asleep as they whispered about the events of the day, which brought them home late. Oh, and by the way, the cancer has been gone since November of 2003, and Les doesn’t need any more chemotherapy.

Les was excited to watch Jason build an electric guitar from a kit (Les had purchased a purple strap for it as a Christmas present that year). Jason had fun fine sanding, finishing and assembling it. He played it numerous times at church during the winter and enjoys the results of his effort. When not playing his guitar at church, Jason heads up the team that mixes the sound for Sunday services. During the week, work at Griffin Laboratories is keeping Jason busy with new employees and all that that brings with it. He seems very satisfied with his responsibilities and challenges.

Les had a big year and got to do some exciting things, some of them for the first time! In March, he celebrated his 5th birthday with representation from his extended family and a Bob the Builder birthday cake. For more details on this and other activities, please visit Les’ website, www.lesfountain.com.

On Mother’s Day the Fountain’s attended Courageous Kids at Sea World (co-sponsored by the American Cancer Society), an event that celebrates the moms of the children who are in, or were in, treatment for cancer. There were crazy games, crafts and lunch. Cecillia was on the San Diego news playing musical chairs. She didn’t win, but she had a huge smile on her face when she got home.

The following weekend saw me holding down the fort while they were in San Diego for an event called Celebration of Champions. This event is a major fundraiser for the cancer care center at Children’s Hospital in San Diego and includes a celebrity relay race with the kids in treatment or recently completed treatment. Les “ran” (actually rode in his hot rod) his relay leg with Trevor Hoffman! He’s a relief pitcher for the San Diego Padres. Later that same day they attended the Padres game and Les and Jason got to stand on the 3rd base line during a pre-game show as the “champions” were celebrated again.

In July we all went to San Diego for a week; Cecillia and Jason enjoyed a wonderful vacation while Les spent 5 days at day camp. While Les was at Camp Reach for the Sky (sponsored by the American Cancer Society), Jason and Cecillia would venture off to various local activities and enjoyed some freedom. They toured the Taylor guitar factory, went to a funny production of “Triple Espresso” with Cecillia’s Grandma, and spent a day (and evening) at Sea World. They disappeared for a couple days and I heard later they had been over at the Hotel Del Coronado doing an island tour, swimming at the pool, and enjoying some great food. Les had a wonderful time at camp, made lots of friends, and is looking forward to returning in 2005.

I saw Les go through many changes this year. He got stronger by the day and slowly put on weight as he exercised at PT, OT, and Gymnastic classes. He chose to attend the 2-year-old Mommy & Me gymnastics class so Cecillia could be by his side as he utilized the different floor apparatus. Most of his hair disappeared this year and then grew back again allowing him to realize his dream of having “Calvin” hair; the spiky, saw tooth like hairstyle of the comic strip character from Calvin & Hobbs. He wears it proudly, just like Calvin did.

Les finished chemo in June ‘04 and I saw a whirlwind of activity here at the house leading up to his “graduation.” In fact, I got moved to a new room so I could continue to be with Les. Cecillia designed his new bedroom in a “Rescue Heroes” theme. I’m surrounded by bold colors on the bed, toy/bookshelves, and drapes. Some of Les’ favorite “Heroes” are displayed on the walls.

My/Les’ old room became a school room/office where Les is home-schooled by Cecillia. I could hear him in there learning phonics, language arts, science, math, history, art, and music. He certainly is smarter than an I.V. tree. He would talk to me about what he had learned as he was drifting off to sleep.

Cecillia has been keeping herself busy teaching Les, playing taxi driver for Les, as well as the house chores, and scrap booking if she can. Jason is often the one to put Les to bed at night because Cecillia is just exhausted! Les’ appointments are getting further and further apart which is one of the reasons I’ve been relegated to the garage. He doesn’t need me to hold his food anymore. He is eating with Jason and Cecillia again.

Well, I would guess this is the first letter you have read written by an I.V. pole, and I hope it will be the last since I’m not living in the house anymore (they allowed me computer privileges this time, but soon I’m moving on to the next little kid who needs me). I did observe some exciting things during my stay at the Fountain house. One of the most touching though was at bedtime when I got to hear Les and his parents reading the Bible and praying. Though I didn’t understand all of it, not being human and all, I could see that their faith in God could brighten up an otherwise tough day. That heaven place sounds pretty cool too, so if you have any questions about it, I’m sure they would be glad to share with you.

Goofy
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